A SCHOOLGIRL who complained about having blurry vision was given 24 hours to live after doctors found a brain tumour.
Hollie Hartley, ten, fell ill while at school and was rushed to hospital by her worried family.
She was then given the bleak diagnosis a brain tumour had been found and she would be dead within the day.
Thankfully, the brave youngster, from Dagenham. East London, pulled through and the tumour was removed.
Her brother Charlie, 18, told Essex Live: “My sister was asking us whether she would die and if she goes to sleep will she not wake up – it was heartbreaking.
“But we were trying to be positive for her sake.”
Charlie at first believed his sister was trying to get a day off school when she complained about getting out of bed in the morning.
But after the school called to take her home as she was sick and had blurred vision, the worried family took her to hospital for tests.
After an agonising six-hour wait, they were given the devastating news Hollie had just one day to live.
What is neurofibromatosis?
Neurofibromatosis is a group of conditions where tumours grow on the nervous system.
It is caused by a genetic mutation in certain genes, and can be either inherited from parents or occur in a patient’s early development.
There are three different types; NF1, NF2, and schwannomas.
Currently, there is no prevention or cure, but the tumours are normally non-cancerous.
A patient may require surgery if the tumours start to cause problems or become cancerous, or they may be treated for complications surrounding the conditions, such as high blood pressure.
- Coffee-coloured patches on the skin
- Tumours on or under the skin
- Learning and behavioural problems
- Problems with vision
- High blood pressure
- Physical development issues including a curved spine or larger than average head
She miraculously survived the 24-hours and was taken to Great Ormond Street Hospital where the tumour was successfully removed.
Doctors later discovered she was suffering from Neurofibromatosis – a rare skin condition where tumours form on nerve tissues.
The disease can sometimes cause tumours to develop in the brain on cranial nerves or on the spinal cord.
Hollie will now have to live with the incurable condition for the rest of her life and return to hospital every three months for an MRI scan until she is 16.
She will also need to undergo chemotherapy to remove growths or tumours.
Her brother said: “She’s now realising what she’s going through.
“She wants to make sure everyone is alright and is hiding her pain. It’s really hard to watch that.”
Charlie has launched a GoFundMe page to help raise money for her trips to the hospital and a holiday to Disneyland when she is better.
He said: “Any donation, however big or small, is greatly appreciated and after treatment is sorted any money left over I would love to treat my sister to a trip to Disneyland Paris and take her to all her favourite places to make more special memories with her.
“Hollie absolutely loves Paris and Disney, so she’s always wanted to go to Disneyland Paris. It would make her dream come true.”