A blood donation drive has begun in memory of a black teenager with sickle cell disorder who was found dead in Epping Forest.
Evidence Joel, the mother of Richard Okorogheye, 19, whose body was found in Essex on 5 April is backing the donation drive beginning on Saturday – called Bonded by Blood: A Mother’s Story. It has been created by a group of black health charities including the ACLT (African Caribbean Leukaemia Trust), along with community organisations Unsickle My Cells (CIC) and SickleKan.
Joel said she was grateful to the health organisations for “coming together to do something positive in the name of my son Richard”.
She said: “Many people who are living with sickle cell are alive today because of the kindness of blood donors from the black community.”
People who are black African, Caribbean and of black mixed ethnicity are more likely to have the rare blood sub-group Ro that many black sickle cell patients need.
The campaign seeks to encourage them to book an appointment at a series of sessions to be held over three consecutive weekends between 26 September and 10 October.
It includes donation sessions in London, Birmingham, Manchester and Bristol, and also has support from NHS Blood and Transplant.
It begins with donation sessions by appointment at Plymouth Grove in Manchester on Saturday and at London’s Harris Invictus Academy in Croydon on Sunday.
There are currently 15,000 people with sickle cell in the UK, which mainly affects people of black heritage.
Okorogheye had been isolating during the coronavirus pandemic and only left home to go to hospital to receive blood transfusions for his sickle cell disorder.
He was last seen leaving his home in Ladbroke Grove, west London, on the evening of 22 March.
Joel contacted police the following day, but her son was not officially recorded as missing until 8am on 24 March.
Okorogheye was diagnosed with sickle cell disorder at eight months old and endured a lifetime of extremely painful crises and regular stays in hospital.
ACLT is an independent charity that formed in 1996 with the main aim to increase the number of ethnic minorities on the UK stem cell (bone marrow) and blood donation registers.
Beverley De-Gale co-founded ACLT with her husband, Orin Lewis, after their son Daniel, who was diagnosed with acute lymphoblastic leukaemia when he was six years old, later needed to receive healthy donated stem cells from a donor.
In 1999 her son became the first black person in the UK to receive a stem cell transplant from an unrelated donor. He then had nearly a decade with his family before he died from multiple organ failure in 2008.
De-Gale said: “The black community coming together like this will help increase the much-needed blood stocks now, in the future and in particular of the Ro blood subtype, which is more commonly found in black people. Many lives depend on it.”
Cynthia Tewogbade, of NHS Blood and Transplant, said: “While we have seen a 29% rise in numbers of black donors, we need 16,000 new donors from black communities this year, as demand for ethnically matched blood has increased by 50%.”
Earlier this month the Independent Office for Police Conduct (IOPC) said it had served misconduct notices on two Metropolitan police officers following concerns from Joel about the police response after her son was reported missing.
The IOPC said the misconduct notices were in connection with its investigation of complaints by Joel and that this process did not necessarily mean that disciplinary proceedings would follow.